not the best pics.. but oh well
Sunday, May 4, 2014
JDRF
My middle son wanted to do fundraising at his school this year for JDRF. His idea was to hold a dodgeball tournament. Im so glad his school is so open and willing to be supportive. There were 9 teams that participated. I got a few pictures! What a fun way to raise funds for research!! I love it!! Way to go Landon!
not the best pics.. but oh well
not the best pics.. but oh well
Another Diaversary...
This year we decided to do a photo shoot for Madis Diaversary again. last year we did the super hero theme.. These kids fight so hard every day to live a "normal" life.. They struggle with so many things.. highs, lows, sickness, ketones, pump sites, finger pricks, weird looks from people, staring, lots of questions from strangers and friends, the emotional rollercoaster of Type 1... Its a lot to deal with.. So this year I wanted to show how strong and brave our little girl is..What do you think?!
She fights everyday to live a fulfilling life despite type 1 diabetes. I believe this is possible with a great attitude, lots of bravery and strength! People could mope and feel sorry for themselves, or they could get up every day and fight this disease! Is it hard? heck ya! but its a choice.. Type 1 doesnt have to stop you from living a happy, healthy life, but its definitely a daily fight! We wont let Type 1 win!
We did a couple outside.. here she is showing off her pump site.. She recently prefers her stomach as her site.. which is interesting since before she wouldnt even try it!
Friday, April 25, 2014
Type 1.....
oh there are so many days I hate this disease..and there are so many more that we just live with it...
This week I had a rough mommy moment.. I was at work (I work at my kids elementary school in the PreK) and I walked into the cafeteria and saw madi right in front of me..
A girl was in front of her and said, "ew, get away, You have diabetes, dont touch me!"
My heart sank! I held back tears as I told this girl that it was not ok to talk to Madi that way. I took Madi aside and she hugged me. I told her to tell me if that ever happens again.
No mother wants to see that.. no one wants their children to feel like that. Like something is wrong with them. Nothing is wrong with my kids.. or any child with a disease.
Oh how I wished she didnt have to have that moment.. I felt so sad for my little girl.
The next day I though more about it and realizing people just dont know about diabetes and it wasnt the girls fault that she didnt know. Yes, she was bullying my daughter, but now its our opportunity to educate her.
This is the reason we advocate for the disease! Why we educate at schools. Why we fundraise and why we share our story!
This week Craig spoke at a school assembly. He did a great job.. At the end he let students ask questions.
One question was , "If you could have a different disease, what would it be?"
We thought it an odd questions.. No one wants any disease.. no one wants to choose one or the other.. I would rather they had no disease..
Craig answered, "I dont mind diabetes because I can still live a full life"
I will try to get the video uploaded from the assembly. He was nervous, but he let the whoile assembly. It is such a great experience for him to share his story and educate others. I am so proud of him!
Our other so Landon (12) wanted to plan a dodgle ball tournament at his school with proceeds going to JDRF.
Thats the school that Craig spoke at. The school had an assemble, will have the dodge ball tournament next week, and Friday will do a school walk! I love that the school is so supportive.
Its important to teach our children that they have to power to educate others.
This week I had a rough mommy moment.. I was at work (I work at my kids elementary school in the PreK) and I walked into the cafeteria and saw madi right in front of me..
A girl was in front of her and said, "ew, get away, You have diabetes, dont touch me!"
My heart sank! I held back tears as I told this girl that it was not ok to talk to Madi that way. I took Madi aside and she hugged me. I told her to tell me if that ever happens again.
No mother wants to see that.. no one wants their children to feel like that. Like something is wrong with them. Nothing is wrong with my kids.. or any child with a disease.
Oh how I wished she didnt have to have that moment.. I felt so sad for my little girl.
The next day I though more about it and realizing people just dont know about diabetes and it wasnt the girls fault that she didnt know. Yes, she was bullying my daughter, but now its our opportunity to educate her.
This is the reason we advocate for the disease! Why we educate at schools. Why we fundraise and why we share our story!
This week Craig spoke at a school assembly. He did a great job.. At the end he let students ask questions.
One question was , "If you could have a different disease, what would it be?"
We thought it an odd questions.. No one wants any disease.. no one wants to choose one or the other.. I would rather they had no disease..
Craig answered, "I dont mind diabetes because I can still live a full life"
I will try to get the video uploaded from the assembly. He was nervous, but he let the whoile assembly. It is such a great experience for him to share his story and educate others. I am so proud of him!
Our other so Landon (12) wanted to plan a dodgle ball tournament at his school with proceeds going to JDRF.
Thats the school that Craig spoke at. The school had an assemble, will have the dodge ball tournament next week, and Friday will do a school walk! I love that the school is so supportive.
Its important to teach our children that they have to power to educate others.
Sunday, March 23, 2014
Been a while
Im not sure I have much to say but that its beena while since Ive posted.
Our family is in the midst of baseball season... 3 boys playing baseball keeps us pretty busy!!
We love it though!
One thing thats been hard lately is Madi's site changes..
she went to getting them fine to now.. now she cries at the words "site change"
She cries and trembles when we need to do a site change.
Its so hard as a mom..
NO, I dont want to poke her with a large needle..
YES, she needs it to stay alive...
NO, I dont want to hear her cry adn see her fear in her eyes...
YES, she needs it to stay alive...
thats diabetes for ya!
Other than that, the kids are doing well. Craig is doing awesome and Im so glad he is so responsible with his diabetes!
In a couple weeks he will be speaking for a middle/high school at an assemble about Type 1. Ill try to video it so I can post it here.
My Pump Pouch business, Madiola Designs is going well. I also have started making glucose meter cases adn also medical bags. Its so fun to personalize them for the fabric and colors people like. If you have to wear a pump or carry a meter, why not make it fit your style?!
Check it out
https://www.facebook.com/MadiolaDesigns
Our family is in the midst of baseball season... 3 boys playing baseball keeps us pretty busy!!
We love it though!
One thing thats been hard lately is Madi's site changes..
she went to getting them fine to now.. now she cries at the words "site change"
She cries and trembles when we need to do a site change.
Its so hard as a mom..
NO, I dont want to poke her with a large needle..
YES, she needs it to stay alive...
NO, I dont want to hear her cry adn see her fear in her eyes...
YES, she needs it to stay alive...
thats diabetes for ya!
Other than that, the kids are doing well. Craig is doing awesome and Im so glad he is so responsible with his diabetes!
In a couple weeks he will be speaking for a middle/high school at an assemble about Type 1. Ill try to video it so I can post it here.
My Pump Pouch business, Madiola Designs is going well. I also have started making glucose meter cases adn also medical bags. Its so fun to personalize them for the fabric and colors people like. If you have to wear a pump or carry a meter, why not make it fit your style?!
Check it out
https://www.facebook.com/MadiolaDesigns
Tuesday, February 11, 2014
Monday, February 10, 2014
night check this week.
I go
in...
stepping on toys in the dark.
. uncover her tiny toes to prick one to get a small drop of blood..
.I apply it to the meter and wait 4 seconds...3...2...1.. 59.
Too low.
I hurry to get a juice box. she sits up and I whisper "drink, drink" she drinks with her eyes closed, half asleep.
Lays back down and I have to tell her to "drink more madi, youre too low sweet girl"..
she sits back up, eyes still closed, opens her mouth to the straw and drinks....
"thats it mama" she says and she lays back down.
Her sweet little face lay on her pillow, off to dreamland once again.
She falls right back to sleep, no worries for her, as I sit and wait 15 minutes.. hoping her blood sugar has come up enough for her to have a quick snack so she can sleep through the night safely.... dreading having to wake her again in a few minutes to recheck and make her eat...
when all she wants to do is sleep..
I dont always have to check my kids at night.. but if they have wacky numbers during the day, new site change, are sick, or are rally active before bed then I do check them.
I hate when they are low at night.. They just want to sleep and they look so peaceful.
But why dont they wake up.. why are they still sleeping if they blood sugar is getting dangerously low.
What if I didnt check?
What if I slept though my alarm?
What if????
Craig start baseball this week so Ill be getting up at least 6 days a week. sometime he is just fine and sometimes he drops quick after baseball even with a -10% basal..
when he is active its really hit and miss.
stepping on toys in the dark.
. uncover her tiny toes to prick one to get a small drop of blood..
.I apply it to the meter and wait 4 seconds...3...2...1.. 59.
Too low.
I hurry to get a juice box. she sits up and I whisper "drink, drink" she drinks with her eyes closed, half asleep.
Lays back down and I have to tell her to "drink more madi, youre too low sweet girl"..
she sits back up, eyes still closed, opens her mouth to the straw and drinks....
"thats it mama" she says and she lays back down.
Her sweet little face lay on her pillow, off to dreamland once again.
She falls right back to sleep, no worries for her, as I sit and wait 15 minutes.. hoping her blood sugar has come up enough for her to have a quick snack so she can sleep through the night safely.... dreading having to wake her again in a few minutes to recheck and make her eat...
when all she wants to do is sleep..
I dont always have to check my kids at night.. but if they have wacky numbers during the day, new site change, are sick, or are rally active before bed then I do check them.
I hate when they are low at night.. They just want to sleep and they look so peaceful.
But why dont they wake up.. why are they still sleeping if they blood sugar is getting dangerously low.
What if I didnt check?
What if I slept though my alarm?
What if????
Craig start baseball this week so Ill be getting up at least 6 days a week. sometime he is just fine and sometimes he drops quick after baseball even with a -10% basal..
when he is active its really hit and miss.
Sunday, January 19, 2014
Its another Diaversary....
Today marks 2 years since Craigs diagnosis...
http://craigandmadi.blogspot.com/2012/06/day-12.html
That day we could have never known how our lives would change..
It was a heart wrenching few days.. but this past 2 years has gone by quick and Craig has dealt with his diabetes in such a positive way. He has helped his sister through her diagnosis and many site changes (she needs a hand to hold every time!).
He was able to turn a diagnosis into something positive. He has spoken at several assemblies, he advocates for himself and this disease, he has also been able to help so many other kids because of this trial in his life. I am so proud of my boy!! Any child who lives with this disease and takes whatever positive they can from it is inspiring!!
He checks his glucose several times a day.. I get up and check it in the middle of the night.. In the past 2 years he has pricked his finger, squeezed out a drop of blood and applied it to a test strip at least 5,110 times... over 5000 times!! Thats insane to me.. although we live this life every day.. with 2 kids with T1... Sometimes it doesnt even seem real.. sometimes I think, "I cant believe we have 2 kids with T1 diabetes..." I would imagine it feels a lot more REAL to a kid who has to poke themselves that many times...
He wears a medical bracelet 24 hours a day (with the exception of baseball games) .. He is not embarrassed by it. He wears it without argue, which I am so thankful for!! He wears it because in his words, "If I pass out, the ambulance will know that I have diabetes so I wont die" That is the reality of a T1 diabetic. Anything can happen, blood glucose can drop quickly and they could have a seizure..anytime, anywhere. Its a 24 hour a day disease.
He has gotten at least 70 pump sites (small IVs that the insulin slowly pumps into his body through), and 1440 insulin shots in this past year. Can you see why he loves his pump so much.. compare the first 6 months of the past year, 1440 shots...To the second half of the past year when he got his pump, 70 pump sites. Both kids have insulin pumps and it offers so much more freedom, even though they are constantly hooked to this small device. 24 hours a day they are connected to their insulin pump and tubing. It is part of them and keeps them alive!
http://craigandmadi.blogspot.com/2012/06/day-12.html
That day we could have never known how our lives would change..
It was a heart wrenching few days.. but this past 2 years has gone by quick and Craig has dealt with his diabetes in such a positive way. He has helped his sister through her diagnosis and many site changes (she needs a hand to hold every time!).
He was able to turn a diagnosis into something positive. He has spoken at several assemblies, he advocates for himself and this disease, he has also been able to help so many other kids because of this trial in his life. I am so proud of my boy!! Any child who lives with this disease and takes whatever positive they can from it is inspiring!!
He has scars from pump sites, small red unhealed sores where his sites were. He has callused fingertips from the constant finger pokes, he goes through highs and lows, bad and good days. Ketones and sickness...
Through all of this, he continues to live his life how he wants to. He hangs out with his friends, plays baseball, does boy scouts and almost has his Eagle Scout award, he gets a 4.33 GPA and is in the top 5% of the Freshman class, he keeps a good attitude and has a great sense of humor. He inspires me so much and shows so much strength! Diabetes is a hard disease, but it doesnt stop him..or slow him down!
Subscribe to:
Posts (Atom)