Anyway, I have noticed its really hard to post and keep up on this blog when the kids are starting the pump.. Madi has been on fora week now. Last night she was 63 at 3 am.. So I had to wake her to get her to eat something.. When Craig would be low at night, he would kind of eat in his sleep!
Madi is a little different.. I have to really wake her up!
And she doesnt want to eat or drink at 3 in the morning!!
Last Sunday was a really rough day.
First off, I do not do well on little to no sleep!
We went to church and Madi was really high.. twice.. So we decided to change the inset (pump site).
I was walking out to the car with Madi and she said, " I just want to be a normal kid! I dont even want diabetes, diabetes sucks!"
That was it.. I broke.. I could not stop crying!
My heart broke for her... for her innocence, her pain, her frustration and her little body having to deal with type 1.
We decided to go home because I was so upset and just wanted to be home and cuddle my sweet girl..
These kids have so much they have to deal with. They fight so hard to "be normal".
They are strong and brave... and I love them so much!
The pump is just another way of getting insulin and has its ups and downs..
She does like the fact that when she wants to eat Kiwi between meals, she does not have to get poked again! The pump is so much better for them in that sense..
We got some exciting news from JDRF.
They are using Madis picture for their advertising for the JDRF walk this year.
I cant wait to see it!!
So, how many of you have a pumper??
What do you like or not like about it??
I have 1.5 pumpers. One full time and one that has gone back to MDI, back to pump for camp, and now about to go back to MDI. Sigh. MY favorite thing about the pump is the insulin on board tracking and it will calculate partial correction amts so I can give corrections at 2 hrs, 3 hrs, etc. Their favorite thing is eating without an injection.
ReplyDeleteCool about the JDRF!