Craig and Madi are siblings who both have Type 1 diabetes. They were both diagnosed in 2012 and with in 4 months of each other. Craig (13) and Madi (5) are awesome kids and here you will see the everyday things that come with Type 1. There is no cure for type 1 diabetes. Thank you so much for reading!!
Leave a comment, we would love to hear from you!!!
If you would like to send an email to Madi or Craig, you can do so here: teriprice05@hotmail.com

Sunday, March 23, 2014

Been a while

 Im not sure I have much to say but that its beena while since Ive posted.
Our family is in the midst of baseball season... 3 boys playing baseball keeps us pretty busy!!
We love it though!

One thing thats been hard lately is Madi's site changes..
she went to getting them fine to now.. now she cries at the words "site change"
She cries and trembles when we need to do a site change. 
Its so hard as a mom..
NO, I dont want to poke her with a large needle..
YES, she needs it to stay alive...
NO, I dont want to hear her cry adn see her fear in her eyes...
YES, she needs it to stay alive...

thats diabetes for ya!

Other than that, the kids are doing well. Craig is doing awesome and Im so glad he is so responsible with his diabetes!
In a couple weeks he will be speaking for a middle/high school at an assemble about Type 1.  Ill try to video it so I can post it here. 

My Pump Pouch business, Madiola Designs is going well.  I also have started making glucose meter cases adn also medical bags.  Its so fun to personalize them for the fabric and colors people like.  If you have to wear a pump or carry a meter, why not make it fit your style?!
Check it out
https://www.facebook.com/MadiolaDesigns

Tuesday, February 11, 2014

Monday, February 10, 2014

night check this week.

I go in...
 stepping on toys in the dark.
. uncover her tiny toes to prick one to get a small drop of blood..
.I apply it to the meter and wait 4 seconds...3...2...1.. 59.

 Too low. 

I hurry to get a juice box. she sits up and I whisper "drink, drink" she drinks with her eyes closed, half asleep. 
Lays back down and I have to tell her to "drink more madi, youre too low sweet girl"..
 she sits back up, eyes still closed, opens her mouth to the straw and drinks....
"thats it mama" she says and she lays back down. 
Her sweet little face lay on her pillow, off to dreamland once again.
 She falls right back to sleep, no worries for her, as I sit and wait 15 minutes.. hoping her blood sugar has come up enough for her to have a quick snack so she can sleep through the night safely.... dreading having to wake her again in a few minutes to recheck and make her eat...
when all she wants to do is sleep..

I dont always have to check my kids at night.. but  if they have wacky numbers during the day, new site change, are sick, or are rally active before bed then I do check them.
I hate when they are low at night.. They just want to sleep and they look so peaceful.
But why dont they wake up.. why are they still sleeping if they blood sugar is getting dangerously low.
What if I didnt check?
What if I slept though my alarm?
What if????
Craig start baseball this week so Ill be getting up at least 6 days a week. sometime he is just fine and sometimes he drops quick after baseball even with a -10% basal..
when he is active its really hit and miss.


Sunday, January 19, 2014

Its another Diaversary....


 Today marks 2 years since Craigs diagnosis...  
http://craigandmadi.blogspot.com/2012/06/day-12.html
That day we could have never known how our lives would change..
It was a heart wrenching few days.. but this past 2 years has gone by quick and Craig has dealt with his diabetes in such a positive way.  He has helped his sister through her diagnosis and many site changes (she needs a hand to hold every time!). 

He was able to turn a diagnosis into something positive.  He has spoken at several assemblies, he advocates for himself and this disease, he has also been able to help so many other kids because of this trial in his life.  I am so proud of my boy!! Any child who lives with this disease and takes whatever positive they can from it is inspiring!! 
 He checks his glucose several times a day.. I get up and check it in the middle of the night.. In the past 2 years he has pricked his finger, squeezed out a drop of blood and applied it to a test strip at least 5,110 times... over 5000 times!!  Thats insane to me.. although we live this life every day.. with 2 kids with T1... Sometimes it doesnt even seem real.. sometimes I think, "I cant believe we have 2 kids with T1 diabetes..."  I would imagine it feels a lot more REAL to a kid who has to poke themselves that many times...


 He wears a medical bracelet 24 hours a day (with the exception of baseball games) .. He is not embarrassed by it.  He wears it without argue, which I am so thankful for!! He wears it because in his words, "If I pass out, the ambulance will know that I have diabetes so I wont die"   That is the reality of a T1 diabetic.  Anything can happen, blood glucose can drop quickly and they could have a seizure..anytime, anywhere.  Its a 24 hour a day disease.
 He has gotten at least 70 pump sites (small IVs that the insulin slowly pumps into his body through), and 1440 insulin shots in this past year.  Can you see why he loves his pump so much.. compare the first 6 months of the past year, 1440 shots...To the second half of the past year when he got his pump, 70 pump sites.  Both kids have insulin pumps and it offers so much more freedom, even though they are constantly hooked to this small device.  24 hours a day they are connected to their insulin pump and tubing.  It is part of them and keeps them alive!

He has scars from pump sites, small red unhealed sores where his sites were.  He has callused fingertips from the constant finger pokes, he goes through highs and lows, bad and good days.  Ketones and sickness...

  
 Through all of this, he continues to live his life how he wants to.  He hangs out with his friends, plays baseball, does boy scouts and almost has his Eagle Scout award, he gets a 4.33 GPA and is in the top 5% of the Freshman class, he keeps a good attitude and has a great sense of humor.  He inspires me so much and shows so much strength!  Diabetes is a hard disease, but it doesnt stop him..or slow him down!


Wednesday, December 18, 2013

504

Does your child have a 504??
I have had the hardest time this year with criags 504.. or lack of.
Before school started I called the school at try to schedule a 504 meeting.
He was starting High School..and a new school so I definitely wanted to meet with the school, talk over the 504 plan and also educate his teachers.
I was told that the school doesnt meet until after school starts.
I found that weird, but ok I guess...
So school started and I had concerns because he had PE on his schedule. I wanted his teachers to know signs of trouble and what his needs were.
The school told be that his teachers had received a copy of his 504 from his old school and that they had 60 days to get with me to do his 504 meeting.
Again, I thought that was just crazy.. What if something happened..
He had a day where he came home and told me he had a bad low at school.
He said he was in the back of the class and he couldnt see. He tried to get his stuff and he checked his blood. he grabbed some tablets. all of this happening in the back of the class without anyone knowing.
That was it, I emailed the principal directly this time demanding a 504 meeting within 2 weeks.
the principal did not email me back, what she did was forward my email to the counselor I had previously been dealing with! So then HE called me and made me feel like Craig is better off without meeting. He said that if we met to discuss his 504 that the school would rule that he does not need one because he is "thriving" in school.  They would take away his 504 and he would have nothing.  He said since he had all A's that he doesnt need a 504. I told him he doesnt need an IEP, he needs a 504 but he insisted that the school would deny him a 504 because he was smart and hard working?? huh?!
 He STILL has diabetes.. and its a daily struggle.. he has needs and highs and lows can happen anytime.. Do they not know that?
So they are actually "helping" me by not meeting about the 504.  Like I was making things harder for Craig by trying to meet and get a 504 signed.
I expressed concerns about PE and that he could get low or even pass out. and the counselor told me that no teacher will give him the glucagon. They would call the nurse and wait for her to get there.. So I said but the teachers NEED to know what to do if he is low..to prevent the possibility of a seizure..or worse! He continued to tell me that the nurse would deal with it. and that the teachers have some info.
I didnt want to cause trouble for Craig at school so I personally emailed each of his teachers with diabetes info and specifics of Craigs lows.  I received emails back from the teachers and felt good that at least I had a personal connection with each teacher and they knew my son and what he needed..

Then next thing I knew it, half the year is already over.  He has finals today!
I emailed the school again saying I want a 504 meeting asap.  I cant believe I let them push me around.  This is our first experience with this.  Craigs last school and Madis school were amazing with their diabetes care and needs.  I had no problems getting a 504 meeting.

I dont know why his school now doesnt want to sign a 504.. I havent asked for anything but a meeting! and they have refused.  I will be taking someone from the American Diabetes Association to help me so they dont push me around. They try to act like they have my and Craigs best interest in mind but then why the heck wont you meet with us or sign a 504.. Its really weird and feels like  a red flag!

I feel bad because I should have demanded a 504 and called a lawyer at first when they kept giving me the run around. Live and learn I guess......

Thursday, December 12, 2013

Bday!

Madi has been fighting highs lately... has a little cough and sore throat today, but doctor says its not contagious and should be good to go to school tomorrow.. I told her we need to keep an eye on her Ketones and she informed me "Diabetes is just crappy!".... I know my 6 year old shouldn't be saying "crappy" but I had to agree with her.. Craig has been fighting ketones today too, sore throat and chills.. (doc says its not strep, just virus). Did you know that T1 kids can get sick easier and also take longer to get better?? When they get sick, its not just take some cold meds and rest.. Its check glucose more, check for Ketones, if they have Ketones, try to flush them out with lots and lots of fluids plus insulin...and sometimes is a hospital visit if you cant get rid of the ketones.. This is one reason we go kind of inactive in the winter.. because people take their sick kids to church and Im super paranoid my kids will get sick.. I hate germs!!! on a happy note we got our tree .Its beautiful and it smells amazing!!!

 Guess what?? someone had a birthday!! Miss Madi is 6!!! She wanted a doctor party and to collect color books for the kids at the hospital.  It was a lot of fun! They decorated cards for the kids at PCH too!!