Craig and Madi are siblings who both have Type 1 diabetes. They were both diagnosed in 2012 and with in 4 months of each other. Craig (14) and Madi (6) are awesome kids and here you will see the everyday things that come with Type 1. There is no cure for type 1 diabetes. Thank you so much for reading!!
Leave a comment, we would love to hear from you!!!
If you would like to send an email to Madi or Craig, you can do so here: teriprice05@hotmail.com

Thursday, August 28, 2014

lots of stuff!

Its been a whirl wind around here to say the least!!
Both kids got approved for CGMs and they are both hooked up! 
 Its been good. and not so good.. We have been trying to problem solve since the start. First Madi was terrified to get the CGM site. Then she got it and it wasnt as bad as she thought.  We had a couple long nights in a row with lows.. Here is the second night of the kids on their CGM:

 "I think I should do a video diary for a night in the life of a d mom.... This is both kids right now.. Madis alarm went off so I got her a drink to bring her back up.. Craig had his in his room but I thought if check him.. Apparently he slept through his alarm because he was 43!!! I'll be keeping his in my room from now on. Both kids got juice, now I wait 15 minutes and hope their sugars come up.. Then they need a protien-carb food.. Sleep is not in my future."
I kept thinking, "I shoudl be getting more sleep..right?"
But the great thing about the CGM is the alarms!! theres so much less guessing! I love that.
One problem we are having is with Craig.
 He is doing baseball and also is on the HS dive team.. SO he is in teh pool A LOT! they sensors dont want to stay on. We have tried skin tak.. and Tegaderm.. Now he put the site in his arm and is wraping it with waterproof medical tape so we will see if that works better!  Any ideas are welcome!!

Im also taking a break from making pump pouches/belts.. I have been so busy with working 6 days a week, having 4 kids (2 with T1) and Im starting school in 2 weeks!  I will do custom orders if you email me though.. And I kept a few glucose meter cases up on my Etsy Page.  I felt so guilty taking them down because I know how nice it can be to have a new case.. Kids get excited about it.. but I just only have so much time in the day!

Both kids have started school! Madi is in 1st grade and her teacher is great!! Sh e even doses her for snack time! And Craig is a Sophmore (really?!)  and he is pretty independent  so he does everything himself..

Another exciting thing is that Craig was chosen to be a JDRF youth ambassador! Im eso proud of him that he isnt shy about talking about Type 1.. he isnt scared to tell his story, educate others and advocate for this disease! Excited for the things to come!

Thursday, July 24, 2014

Love finding new things..A back to school MUST HAVE!

SO.... yesterday I found there perfect little snack bags.. Theres a size also for a whole lunch, but I found the smaller size and thought it was awesome!!
PERFECT for carrying meters on a hot day, insulin for a day trip, or any diabetic supplies for school, away sports games, ect!!
They had several colors.. We got a cute leopard print for Madi and just plain black for Craig.  They were only $11!!!
Last year I bought one of these style bags for Madi for her lunch and she will use it again this year! They last a long time and are well worth the price! 
SO, you put the whole bag in the freezer and the inside freezes.. It keeps items cold for hours!
We live in Arizona so these are super!




Wednesday, July 23, 2014

how was your summer!??

 well we are back from a 2 month vacation.. (Our paperwork is turned into the insurance!! Hoping the kids get approved for a CGM!!)

Back to school is right around the corner!
That means meetings with teachers, packing diabetic supplies, school shopping, teacher training, and preparing our kids for another school year. 


When you have a T1 kiddo, back to school is a lot more than just school shopping and sending them off to school..

Here are some things we do to prepare our kids AND the school for another school year with T1.


  • Prepare the nurse:   for us, this means taking in a small tub of items my child will possibly need through out the school day.  Both kids will have items in class and their backpack, but here are items we give to the nurse:
     *carb/protien snacks like crackers and PB, pretzels & yogurt
     *boxes of juice and tablets
     *extra pump battery
     *Glucagon
     *Alcohol wipes
     *A meter for the nurses office 
     *extra test strips
     *extra pump tubing
     *Ketone strips

  • Prepare the teachers & teaching staff:  I need to go in and train the 1st grade staff (all staff just in case her teacher is absent at any time).  We will cover what T1 is, high/lows, Glucagon, warning signs, carbs & intake, checking glucose, quick sugars and more.  Teachers will be able to ask questions     After the meeting, we will make sure that her teacher had the following items in class:
     *juice & tablets
     *carb/protien snacks like crackers and PB, pretzels & yogurt
     *extra test strips
     *a meter for the classroom
     *no carb snacks like beef jerky
     *Handouts of signs of highs/lows
     *A substitute paper with a photo of Madi on it for easy recognition in case of a sub
     *she will also have a very small bag to take to recess with a meter, glucagon and quick sugars in it.  I got a pencil bag that had handles and fit everything perfectly!!
    
  •  Meet with school staff, principal and nurse to create a 504:  luckily we have a great school that we probably dont even need a 504, but I like to have one anyway.  Some specific things we put in her 504 are:
     *A parent is able to go on all field trips or a nurse will be sent
     *I will get a call if she is above 300 or under 80
     *absences diabetes related will not could against her
     *her carb ratios and a doctors order
     *She will be able to test BS in class to have less access to sickness at the nurses office.
     *She will be able to wear her pump pouch and belts in any color or style she chooses (she goes to a charter school with uniforms)
     *If her BS is under 80 or aboove250, she will not take tests until she is within range
     *school will text me before giving her any insulin to confirm amount.
     *she will have unlimited access to water and bathroom breaks
     *much more specifics on her daily checks as well

For Craig, since he is in high school he is independent with his diabetes.. Meaning he doesnt really need help unless there were a crashing low and he were unable to take care of himself.  For this reason, I email all of his new teachers and meet with them for a quick T1 education meeting.  We go over his needs and what to expect from him (and the teachers).  

Here are some fun pics from our summer vacation!
 Madi did her first BMX race! Strider adn she came in 2nd!
 Fishing day!
 Running around and enjoying the tire swing !

 Cowboy Kids!!

 Riding horses!

Madi ate tons of berries this summer!!! e had a lot of fun picking berries and making lots of Jam this summer!

Monday, May 26, 2014

kinder grad, another year done and a busy family

so busy lately!  we have survived another school year! Yay for summer vacation!
 Heres our Kinder grad!! She had a great year with amazing teachers, nurse and aide who watched out for her all year!!
 And
 Madi had a fun Kinder Luau!! she wore her pump the whole time and I couldnt get her numbers down.. well after the Luau we took her site out and it was kinked.. so wonder I couldnt get a good number!



our baby is off to 1st grade!

Craig spoke at another school. He did a great job talking about Type 1 and advocating for the disease.  He works hard to educate people and Im so thankful he isnt shy about it!
  Great job Craiger!


Craig finished his freshman year with a 4.5 GPA!  He had 3 honors classes adn got all A's.. finished his baseball season, participated in Boy Scouts and Advocated for JRDF. He had a busy and awesome year! We are so proud of his accomplishments! all while dealing with Type 1 (and getting a 7.5 A1C!) 

Our type 1ers are busy, but yes we have 2 more kiddos who are just as busy!!
 Baseball season is always super busy!!

 Love the busy life of having 4 kids!!


Thursday, May 8, 2014

About Diabetes, from Madi

I asked Madi a few questions since her Diaversary is tomorrow.. here they are..

Me: What is the hardest thing about Diabetes?
Madi: Getting my inset because it shoots in my body and it really hurts.

Me: Why is it so important to take care of your diabetes?
Madi: Cause if you are really high a lot, you could lose a leg or go to the hospital and have to get an IV.  If you get low and think its not a big deal, then you dont do anything about it then you could pass out.


Me: Whats it like to get shots and insulin all the time?
Madi:  hurts hurts hurts!!   It hurts and sometimes I cry.

Me:  How do you stay positive about diabetes?
Madi: kissing my mom all day! My mom and my dad help me with my diabetes.

Me: What does it mean to "win the fight against T1 Diabetes"?
Madi: Try to help people and try to find a cure.

Me: Why do you want a cure?
Madi: Because other people um.. sometimes diabetes hurts and I dont want other people to get hurt because it hurts really bad, so I hope theres a cure so nobody else has diabetes. 

Me: What have you learned from diabetes?
Madi:  I learned about shots and I need help with my diabetes.

Me: What would you tell someone who just got diagnosed with T1 diabetes?
Madi: I would say, "I hope theres a cure for you because I dont want you to have diabetes.  I dont want you to get hurt, and diabetes hurts."

Me: What can't you do if you have diabetes?
Madi: You cant eat candy unless you get dosed.  You cant live without insulin.

Me: What CAN you do if you have diabetes?
Madi:  You can swim in a pool, read books, take pictures, go to school, talk to people...You can do anything!

I love her answers.. It gives such insight on a childs view living with this disease..
Its hard, It hurts, but they can still be a kid and "swim in a pool, read books, take pictures, go to school, talk to people...You can do anything!"
I love my girl!!

Sunday, May 4, 2014

JDRF

My middle son wanted to do fundraising at his school this year for JDRF.  His idea was to hold a dodgeball tournament.  Im so glad his school is so open and willing to be supportive.  There were 9 teams that participated.  I got a few pictures! What a fun way to raise funds for research!! I love it!! Way to go Landon!

not the best pics.. but oh well








Another Diaversary...

This year we decided to do a photo shoot for Madis Diaversary again. last year we did the super hero theme.. These kids fight so hard every day to live a "normal" life.. They struggle with so many things.. highs, lows, sickness, ketones, pump sites, finger pricks, weird looks from people, staring, lots of questions from strangers and friends, the emotional rollercoaster of Type 1... Its a lot to deal with.. So this year I wanted to show how strong and brave our little girl is..What do you think?!
She fights everyday to live a fulfilling life despite type 1 diabetes.  I believe this is possible with a great attitude, lots of bravery and strength!  People could mope and feel sorry for themselves, or they could get up every day and fight this disease!  Is it hard? heck ya! but its a choice.. Type 1 doesnt have to stop you from living a happy, healthy life, but its definitely a daily fight!  We wont let Type 1 win!






 Love this strong girl so much!! We dont celebrate the disease.. we celebrate the strength, bravery and courage Madi shows while living with it! We are proud of you Madi, you are awesome!

We did a couple outside.. here she is showing off her pump site.. She recently prefers her stomach as her site.. which is interesting since before she wouldnt even try it!