Craig and Madi are siblings who both have Type 1 diabetes. They were both diagnosed in 2012 and with in 4 months of each other. Craig (16) and Madi (7) are awesome kids and here you will see the everyday things that come with Type 1. There is no cure for type 1 diabetes. Thank you so much for reading!!
Leave a comment, we would love to hear from you!!!
If you would like to send an email to Madi or Craig, you can do so here: teriprice05@hotmail.com

Monday, September 29, 2014

November is Diabetes awareness Month!!


I am SO beyond excited to share all of the photos I have taken over the past month. 
I decided to do  Diabetes Awareness Project with my photography.  I have met 30 different people who have type 1 diabetes and photographed them.  It has been such an awesome experience. I have met some brave kids! and adults!  All with different stories and challenges. 
I will be sharing in November, but I thought I would share Madis picture. Each person gave me a quote on what they wanted people to know about Type 1 diabetes.  I will be posting one person each day in November, with their story and a quote.
It is so telling of each person when you read their quote.
 Madis quote might not seem that deep, but it reminds me that kids made fun of her and a boy said, "EW get away, I don't want to get diabetes!" and another kid told her it was disgusting that she had diabetes... She what does she want people to know about Type 1??
 "You won't get diabetes by touching me or being my friend!"
She is one tough girl, but it makes her sad when people dont want to be her friend because she has diabetes :(  

 I cannot wait to introduce you all to these brave people! Coming in November #herosoftype1project on instagram, Teri Lyne Photography on facebook, and Ill also be posting to this blog each persons quote with their picture!!

Is it November yet!????

Sunday, September 21, 2014

as a mom....

Today was a rough day..

As a parent of a child, or in my case children with Type 1 diabetes, there are so many levels of emotions that come with the everyday minute to minute care of diabetes.

There is
Sadness... I often feel sadness when I see my child in pain because they have to change a pump site.  They are frustrated with diabetes and with life in general and there is not much I can do to help.  I can't fix it for them.  I cant take this disease away from them.  Sadness when my child yells "I hate diabetes, I dont want it anymore!"  Sadness when I see their sores all over their body from pump sites and CGM sites.  When I see their callused fingertips that never get a real chance to heal.  Sadness when that meter says 432 and we are at school and I see the disappointment on their face because they know they have to do a site change and they feel really crummy but they have to continue on with their day..when all I really want to do it take them home and cuddle them!!  Sadness when they express frustration with the disease and all I can say is Im sorry...but Im sorry isnt enough.

Fear... fear when its late at night and they are sound alseep but their blood sugar is in the 40s... what if I hadnt check ed them.. what if one night I sleep through it and  they dont wake up.. Fear when they arent home and I dont know if they are doing what they need to to be safe with their diabetes..what if they pass out and no one knows what to do? I dont live in fear, but I have days when I have fear...

Helplessness... Often I feel helpless.  When their numbers are all crazy and their pump site isnt working, or its kinked, when they keep dropping even though we made sure they were at a good number..when they are exhausted because they had 2 lows that night and they didnt sleep much but they have to get up for school anyway and act like everything is great when no one know what they went through all night... when they are in tears because they dont want to rip the site out...I feel helpless because even though they dont want to get it, they NEED to get that pump site so they can get their insulin.  Helpless when they ask about a cure and I have no answers for them...

Frustration...Oh the frustration!!! Living on barely any sleep because every night at least one of them has a high or low and their CGM is going off.  Frustration because of the medical bills and prescriptions I am constantly filling.. frustration because there is not one thing I can do to make this disease easier for any of us...frustration because sometimes there is no rhyme or reason for the high or low they are experiencing! This disease is so unpredictable!

The stress is often overwhelming but you have to just keep going.  Their lives depend on it.
 Theres no day off from it, theres no break and theres no answer..You just have to keep going..

I have to be reminded of this quote.. and remind my children of it. They have the emotional and physical pain of this disease.  Even though they are tough and push through, they are struggling every day.  Especially lately. 

I know in life, we need to be positive and find the good in our lives. There is so much good. and we are so very blessed.. but that doesnt take away the  daily struggle..

I love this quote from Dieter F. Uchtdorf,
"Being grateful in times of distress does not mean that we are pleased with our circumstances. It does mean that through the eyes of faith we look beyond our present-day challenges. When we are grateful to God in our circumstances, we can experience gentle peace in the midst of tribulation. In grief, we can still lift up our hearts in praise. In pain, we can glory in Christ’s Atonement. In the cold of bitter sorrow, we can experience the closeness and warmth of heaven’s embrace."





Diabetes is hard.. for everyone involved... It is a day to day disease...
I know my kids are strong.. they are so very brave... I know they are much more thatn the pain and frustration this disease causes... Some days, they need a little reminder of that.   Days like today....

Saturday, September 20, 2014

over it...

Madi has had too ma y kinked sites lately.. she loves gymanstics and her little body has no body fat... so flipping, backbends, cartwheels... kinks those sites by her muscle rubbing against them.. She is SO over it!!

Friday, September 19, 2014

walk team

JDRF Walk to Cure Diabetes!

Check out our walk team, donate if you can, and join us on walk day!! Help fund a cure for type1 diabetes!

Monday, September 15, 2014

dang it...

The CGM has been a rollercoaster for Craig.  And he wants off.. He is so over it.
I on the other hand love it!

But Im not the one wearing it.. and he is too old to force him to wear it.. in my opinion.

He takes very good care of his diabetes and has a great A1C, so i cant complain much.

He does dive and baseball and the biggest problem is keeping the sensor on long enough.. The longest he has gone is 4 days...then it falls off.
I ordered Opsite and it has worked great for Madi, but I got it in the mail when Craig decided he was over it.
He had a practice for a church activity.  He said it was poking him and he could feel it under his skin..the CGM was saying it couldnt communicate and he pulled it out. 
He hasnt put a new one in since.
The hard part is that now, theres no visual of his blood sugar.  At night I have to check him, or hope he is ok..
Even if he goes to bed a good number, does not guarantee he wont drop.  Especially since he is involved in so many activities..

I still am hoping he decides to put it back on.  It is such a relief to me to know and have an alarm at night.
I worry he may not wake up..
Ive checked him before and hes been in the 40s and not woken up.. Ive just woken up from my sleep and felt the spirit tell me to check him.  Its been amazing that every time that happens, he is low. 
The other night I felt it.  I woke up and felt I needed to check him. It was 5am so I thought to myself, "no, he is fine, he will be up in an hour and he was good before bed"
I could barely keep my eyes open or even think about getting out of bed...
I closed my eyes and again felt I need to check him.. I again ignored it and closed my eyes..'Then I had a flash of him having a seizure in his sleep..
Ya, that woke me right up! I got his meter and checked him and he was low.
Those are the things that really make me want him to wear the CGM!!
Its a scary disease.. And its so hard to see him struggling..
He just wants to be "normal" and not have tubes and sensors on him 24/7...
Which I understand..
He has always been so positive about his care, and he is just having a hard time right now.
I know it will pass..

Monday, September 8, 2014

Official Eagle Scout!

Craig has worked SO hard to become an Eagle Scout.  He did his project for Phoenix Childrens Hospital.  He wanted to give kids something to do in the hospital because he knows how it feels to be stuck in a hospital as a kid.  He is amazing! Here is his project:
http://craigseagleproject.blogspot.com/


Thursday, September 4, 2014

Type 1 slow him down??? ppsshhh!!

Well, Craig decided to do dive this year.  He is liking it!  Its pretty fun to watch!  He wore his CGM the whole time.. Had to wrap it though.. We've had a tough time keeping it on for the 7 days with all this pool time!!  We have to wrap it with medical gauze.. waterproof stuff!  But it works for the most part... Hoping we can keep this one on for a whole week!! 
Craig never lets diabetes stop him from doing what he sets his mind to! He goes to Dive practice and if they dont have practice one day, he goes to baseball practice (open field or pitching practice for fall ball)  Some days, he goes to baseball.. then dive!! He is one driven young man!!