Day 204

Can you even believe it happened again!???

This time was a low right before lunch. Both kids were running around and having fun outside and before you know it, they were both low... and the SAME low!!

Both got juice and felt much better.. I took this while they were waiting to get those sugars up.. that 15 minute wait always seems longer than it really is...
This has only happened 3 times since diagnosis..  (where they have the same number)

Madiola Designs

Hello Friends..

Please share this link!
I make these and they are very affordable.  Im trying to get the word out!
Interchangeable insulin pump pouches!


http://www.etsy.com/shop/MadiolaDesigns

Day 203

The other night Craig and Madi wen to bed at the SAME number! 174.

I was interested to see what their numbers would be at 3 am.. I checked them both and Craig was 75 and Madi was 80..

Crazy how they both dropped almost the exact same amount in the same amount of time right?

On another note, my pump pouches are selling and its it SO fun..
I love knowing little kids are wearing my pouches and enjoying it!  I feel like its enough of a pain for a little kid to have to wear a pump all the time, but Im glad I can help make it fun and cute!
 Here are a couple new belt designs adn im working on coordinating pouches as well.
I just ordered some cute dinosaur and car fabric too so I can have more options for little boys.. I have so much fun making them!

I can also do any style or theme, just let me know what you are looking for! I love feedback!!

Day 202

Happy Summer!!!!

Day 201

I have been thinking lately...

I usually posts about the kiddos and their ups and downs with type 1..

But the other day I had a bit of a break down..

Nothing major happened.. Craigs pump meter was left at church so I had to go back and get it.. but no one was there so I had to wait around for an hour for someone to open the church just hoping I would find it there.. Luckily I did. 

As I sat there waiting, I thought "It is always something..!"

My lack of sleep makes me emotional and I started to cry.. over a meter..

And although my emotions were not about the "meter" it was part of it.  Diabetes is hard, and changes the lives of the whole family... Lately, its been really hard.

I thought maybe I should share a bit, because I KNOW there are parents out there going through the same things..

You try to be strong for your kids. Diabetic or not.

You do all you can to help them and ease their pain.

You worry about them, their emotions, the highs and lows. the frustrations of diabetes.

You exhaust yourself with constant calculations, midnight checks, late night site changes, shots, snacks, educating everyone you can about their disease so you know they will be safe, while ALSO taking care of the "normal" everyday things  for your whole family like, cleaning, working, cooking and tending to your whole family...
Paying for bills, regular and medical is overwhelming.  
Boy Scouts, sports, school, puberty, fighting kids, pets, projects, and so much more..

IT IS A LOT OF WORK.

And it can be really hard.

Lately, I have felt emotionally and physically exhausted.

I do not do well on lack of sleep.  I have let myself go.. I honestly style my hair and wear makeup like once a week.. I feel out of shape, tired and a total mess!! Id probably wear sweats everyday if I could. 

Everyday, I feel like Im just trying to stay above water. 

I often feel like I havent been able to enjoy being a mom the past few months because I have been completely tired and overwhelmed with all of my responsibilities.  I havent really laughed.. or ran and played with my kids.. because when ever I have a chance, I try to rest.  That is hard for me.. I LOVE being a mom.  And I want my kids to know that. 

I feel like Im am just "surviving" right now.

I dont need anyone to feel sorry for me, or whatever, Im just sharing my feelings and the way things are here right now.  Life comes in chapters, and this one my friends, is a really hard one!!

I know we will get though it, I know things will get easier, and I know we will all be just fine, but right now, its hard, really hard.

Being a mom is difficult some times.. It is a full time busy busy job!  Add diabetes in the mix and its ...I dont know how to put it, but its just a lot. 

I would do anything for my kids and I know they know that.  I would never want them to think they or diabetes is a burden.  because diabetes or not, I love my kids and love them just how they are. 

But the truth is, right now, Im having a hard time juggling all life has in front of me right now.

Day 200

 Well we have enjoyed the beach for a couple of days.. Had a couple lows from all of the excitement.. Also The first day, Madi got sand in her site even though we put the clip in it to protect it.. So the second day, we covered it with self adhesive ace bandages.. ok, I dont think thats what it is called, but its a stretchy bandage that sticks to itself, so we wrapped her arm and it worked great. 

 She never would actually get IN the water, so I didnt worry about the pump at all.  We did take it off when we buried her int the sand

 Madi and her aunt! My aunt too!! Seriously, I cannot take pic of Madi with out a silly face!

 Me and my girl!

 Me and the kids..

 And here a re a couple pics of the kids at the Creek when we got to Washington..

We have had a hard time getting Madis pump settings where we want them... She is high at midnight then drops a ton by 3 am.. I usually have to give her a drink or gogurt at 3 to sustain her until morning...
So they made some pump changes to her basal and now she is just high ALL night..

I personally think her carb count needs to be changed too because she is high all day..which worries us.. So we change her site after a couple highs (over300) and its fine.. no kink, no problem... SO that is just frustrating! hoping for better numbers SOON!!

Day 199

Im not really sure why I am labeling these by day.. because clearly we are WAY past day 199!!

Anyway, I have noticed its really hard to post and keep up on this blog when the kids are starting the pump.. Madi has been on fora week now.  Last night she was 63 at 3 am.. So I had to wake her to get her to eat something.. When Craig would be low at night, he would kind of eat in his sleep!
Madi is a little different.. I have to really wake her up!
And she doesnt want to eat or drink at 3 in the morning!!

Last Sunday was a really rough day.
First off, I do not do well on little to no sleep!
We went to church and Madi was really high.. twice.. So we decided to change the inset (pump site).
I was walking out to the car with Madi and she said, " I just want to be a normal kid! I dont even want diabetes, diabetes sucks!"
That was it.. I broke.. I could not stop crying!
My heart broke for her... for her innocence, her pain, her frustration and her little body having to deal with type 1.
We decided to go home because I was so upset and just wanted to be home and cuddle my sweet girl..
These kids have so much they have to deal with.  They fight so hard to "be normal".
They are strong and brave... and I love them so much!

The pump is just another way of getting insulin and has its ups and downs..
She does like the fact that when she wants to eat  Kiwi between meals, she does not have to get poked again! The pump is so much better for them in that sense..

We got some exciting news from JDRF.
They are using Madis picture for their advertising for the JDRF walk this year.

How exciting is that?!! They are going to put my photography link on the back too!
I cant wait to see it!!

So, how many of you have a pumper??
What do you like or not like about it??