Thursday, November 7, 2013
A couple custom Madiola Designs orders!!
Saturday, November 2, 2013
Day 121
Tuesday, October 29, 2013
Day 120
THE WALK IS COMING!!!!!!!
we got our shirts today!!!
we are SO close to our team goal... I you would like to donate, go here:
http://www2.jdrf.org/site/TR?team_id=81558&fr_id=2410&pg=team
http://www2.jdrf.org/site/TR?team_id=81558&fr_id=2410&pg=team
Monday, October 21, 2013
Day 119
oh man diabetes kicked out butts this week...
Madi had a bit of a breakdown..
She had a kinked site and Moderate Ketones which caused her to be sad and sick feeling.
Her blood sugar was 504. She cried and cried, begging us not to give her a new pump site.
"Please I dont want diabetes, I never wanted diabetes. I dont want a new site, i dont like shots!"
My eyes welled with tears. I couldnt stand it. My sweet girl.
It is so hard as a parent to see your child go through this. Knowing they NEED to get the insulin to stay alive, but they beg you not to do it.
After a little break, and a warm bath she ended up getting a new site. Because she was high I went to get the Pen because she didnt want a new pump site. As soon as she waw the pen she said "oh, the pen is so big, I want a site!"
And that was it. New site, better numbers, lots of water and now no Ketones.. Whew... we got though it..
Our family deals with Type 1 every day, but
last night we really hated diabetes!
Madi had a bit of a breakdown..
She had a kinked site and Moderate Ketones which caused her to be sad and sick feeling.
Her blood sugar was 504. She cried and cried, begging us not to give her a new pump site.
"Please I dont want diabetes, I never wanted diabetes. I dont want a new site, i dont like shots!"
My eyes welled with tears. I couldnt stand it. My sweet girl.
It is so hard as a parent to see your child go through this. Knowing they NEED to get the insulin to stay alive, but they beg you not to do it.
After a little break, and a warm bath she ended up getting a new site. Because she was high I went to get the Pen because she didnt want a new pump site. As soon as she waw the pen she said "oh, the pen is so big, I want a site!"
And that was it. New site, better numbers, lots of water and now no Ketones.. Whew... we got though it..
Our family deals with Type 1 every day, but
Tuesday, October 15, 2013
Day 118
well diabetes is really hard.. and is a lot of work.. and just kind of stinks..
BUT honestly I can say that some really great things have come from this trial in our lives... One of them happened last week.
Well several months ago Craig told me that he wanted to get his Eagle Scout Rank before he was 14. He wanted to get his Eagle project done before then. Ok, great!
Then he told me that he wasnt sure "what" he wanted to do, but that he knew he wanted to do something for the hospital.
I didnt really want him to just do a "collection" project.. I wanted his to really DO work , put a lot of time and heart into it..
When he told me his project idea, I was super excited!
He decided he wanted to host a carnival for the kids at the Childrens Hospital.
This was several months ago. He has put in countless hours (with his dad) of sweat and hard work.. He chose and designed 6 carnival games. He had to get donations from several
hardware stores and also received some cash donations that helped immensely with supplies.
They built these games and worked so hard on them. He received a bunch of prizes donations of great thins for the kids at the hospital. He wanted items that they could use in their rooms.. He had puzzles, slinkys, color books, markers/crayons, games, Legos and so much more!
I am so proud of my boy!!
But again, to the point..had diabetes not entered his life, he may not have even thought to do this project. Through his trials he has blessed so many people. The night of the carnival 100 people attended... He said his favorite part was "the kids faces when they came in and as they had fun"
The pictures tell the story..enjoy!!
a couple games ready to paint.. I was happy to get my house and garage back after the event!
shopping...
the ring toss game!
each game was made from scratch.. sheets of wood and an idea!!
Plinko.. the more detailed game of them all!263 tiny dowels were used to make this game! each with the top painted a different color.. this game was a lot of work for Craig, but looked really cool!!
target toss!
these 2 put a lot of work into this event!
Diabetes is a huge trial but it doesnt overcome his life.. He triumphs above it! Great job Craiger.. You are such an awesome young man and we are proud of you for serving so many kiddos at the hospital and giving them such a fun night!!
Kids came in in wheel chairs, hooked to IVs, with neck brace even.. all ages from 2 years and up. It was such a great experience to see the sweet kids enjoying their evening an just having fun!
Many people can be bitter.. poor me.. but he has really turned this trial into something amazing. I hope he continues to fight this disease with such humility and strength.
BUT honestly I can say that some really great things have come from this trial in our lives... One of them happened last week.
Well several months ago Craig told me that he wanted to get his Eagle Scout Rank before he was 14. He wanted to get his Eagle project done before then. Ok, great!
Then he told me that he wasnt sure "what" he wanted to do, but that he knew he wanted to do something for the hospital.
I didnt really want him to just do a "collection" project.. I wanted his to really DO work , put a lot of time and heart into it..
When he told me his project idea, I was super excited!
He decided he wanted to host a carnival for the kids at the Childrens Hospital.
This was several months ago. He has put in countless hours (with his dad) of sweat and hard work.. He chose and designed 6 carnival games. He had to get donations from several
hardware stores and also received some cash donations that helped immensely with supplies.
They built these games and worked so hard on them. He received a bunch of prizes donations of great thins for the kids at the hospital. He wanted items that they could use in their rooms.. He had puzzles, slinkys, color books, markers/crayons, games, Legos and so much more!
I am so proud of my boy!!
But again, to the point..had diabetes not entered his life, he may not have even thought to do this project. Through his trials he has blessed so many people. The night of the carnival 100 people attended... He said his favorite part was "the kids faces when they came in and as they had fun"
The pictures tell the story..enjoy!!
Diabetes is a huge trial but it doesnt overcome his life.. He triumphs above it! Great job Craiger.. You are such an awesome young man and we are proud of you for serving so many kiddos at the hospital and giving them such a fun night!!
Kids came in in wheel chairs, hooked to IVs, with neck brace even.. all ages from 2 years and up. It was such a great experience to see the sweet kids enjoying their evening an just having fun!
Many people can be bitter.. poor me.. but he has really turned this trial into something amazing. I hope he continues to fight this disease with such humility and strength.
Tuesday, September 24, 2013
Day 117
Because Diabetes is a family disease...
do our other kids have to get shots? no...
do they check their blood every day? no..
But honestly everything our diabetic kids do, affects our family..
Time.. The time we have for our non-D kids is much more limited.. Its sad to say, but its true.. Taking the time to go to meetings with schools, endo appointments, even just the time before meals to check glucose, add carbs and dose is time taken away from the family.. This was one of the hardest adjustments for my non-D kids.. They felt unimportant.. because their needs were set aside because of the urgency of our D kids..
Thats hard for a parent.. You want all of your kids to feel loved and appreciated. But the fact is, when your diabetic child has a blood sugar of 52 and you have to run and get them a juice, monitor them and recheck, that is the most important thing at that moment..
The expenses of diabetes affects our family.. I now work 30 hours a week outside of the home to help pay for the diabetic supplies. This is the first time in 10 years that I have worked outside of the home.. Clothes arent washed, dishes not done and dinner not always ready because I am working. My kids have to get ready for school by themselves because I am at work by 630 am. These arent life changing things, but they are definately changes..and adjustments made because of diabetes..
The exhaustion of it all... lol, yes, when mom is getting up at night to check glucose..and sometimes up several times due to lows, or highs, she is tired!! Sometimes I feel like a zombie! I never get a real nights sleep! on top of it, keeping up with all of the kids' activities, homework, and life is exhausting!! So im a little grouchier, a little less patient (ok, a LOT) ..
Although there are a lot of changes a family does when a child is diagnosed, you do it all as a family. We go and volunteer for JDRF as a family..
We do the Diabetes walk as a family..
We go through this journey..as a family.
We support eachother adn do our best to make everyone feel oved adn important.
Our non D kids know that this is a life threatening disease and they help look after their siblings.
Just the other night I was downstairs watching a movie..
My son text me and said , "Madi just woke up and was sweaty, she might be low. But she went back to sleep"
I ran up to check her and she was 63.. what would have hapened if he didnt tell me and she just slept? maybe a seizure? I dont know... but how thankful I was that he told me and knew what to look for. He knew it was important information and let me know immediately! He is 12.
Sunday, September 8, 2013
Day 116
I feel so bad that I havent been blogging..I just started a Mon-Friday job to help pay for all of our "new" expenses... Who knew diabetes was such an expensive disease?? I didnt thats for sure!!
Every Friday I post a "why we walk" post on facebook.. Here was Fridays...
why we walk.. I now have an mon-friday job.. Which I have not had in a very long time.. why? because the monthly cost of diabetes is SO much.. And we have amazing insurance... but what it doesnt cover every month adds up..
home owners Insurance on insulin pumps $120
Insulin $50
Glucagon $25
Pump and meter care (batteries, pouches, ect) $30
Juice boxes $15
Glucose tabs $10
Protien bars/jerky $50
Free snacks $20
Gatorade $15
extra supplies $100
Doctors bills $70
$505 extra in bills per month just from diabetes, and Im sure Im leaving something out! we want a cure!!
http://www2.jdrf.org/site/TR?team_id=81558&fr_id=2410&pg=team
We are walking this year and each friday I post a reason we fundraise and why we need a cure..
on another note..
Today at church Madi had to check her glucose.. She started checking and a little girl said "Ew.. thats disgusting!'
I felt so sad for Madi... She has to do it and she is so used to doing it now that I guess I didnt think someone would think its gross...It made me sad to know people will say those things to her.. although this little girl has no idea and was just saying what she thought, it still sucks! Madi may have said the same thing before she knew anything about it you know?? but no mom wants to hear someone say that to their little girl....
Also this week.. Miss Madi and I got a pedicure.. Anyone elses T1 kiddo have really coarse feet?? Madis are so bad! It was nice for her (and I) to get pampered.. Havent had a pedicure in like 6 months!! Since I got paid I decided we needed one!!
Every Friday I post a "why we walk" post on facebook.. Here was Fridays...
why we walk.. I now have an mon-friday job.. Which I have not had in a very long time.. why? because the monthly cost of diabetes is SO much.. And we have amazing insurance... but what it doesnt cover every month adds up..
home owners Insurance on insulin pumps $120
Insulin $50
Glucagon $25
Pump and meter care (batteries, pouches, ect) $30
Juice boxes $15
Glucose tabs $10
Protien bars/jerky $50
Free snacks $20
Gatorade $15
extra supplies $100
Doctors bills $70
$505 extra in bills per month just from diabetes, and Im sure Im leaving something out! we want a cure!!
http://www2.jdrf.org/site/TR?team_id=81558&fr_id=2410&pg=team
We are walking this year and each friday I post a reason we fundraise and why we need a cure..
on another note..
Today at church Madi had to check her glucose.. She started checking and a little girl said "Ew.. thats disgusting!'
I felt so sad for Madi... She has to do it and she is so used to doing it now that I guess I didnt think someone would think its gross...It made me sad to know people will say those things to her.. although this little girl has no idea and was just saying what she thought, it still sucks! Madi may have said the same thing before she knew anything about it you know?? but no mom wants to hear someone say that to their little girl....
Also this week.. Miss Madi and I got a pedicure.. Anyone elses T1 kiddo have really coarse feet?? Madis are so bad! It was nice for her (and I) to get pampered.. Havent had a pedicure in like 6 months!! Since I got paid I decided we needed one!!
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