Craig and Madi are siblings who both have Type 1 diabetes. They were both diagnosed in 2012 and with in 4 months of each other. Craig (16) and Madi (7) are awesome kids and here you will see the everyday things that come with Type 1. There is no cure for type 1 diabetes. Thank you so much for reading!!
Leave a comment, we would love to hear from you!!!
If you would like to send an email to Madi or Craig, you can do so here:

Monday, September 15, 2014

dang it...

The CGM has been a rollercoaster for Craig.  And he wants off.. He is so over it.
I on the other hand love it!

But Im not the one wearing it.. and he is too old to force him to wear it.. in my opinion.

He takes very good care of his diabetes and has a great A1C, so i cant complain much.

He does dive and baseball and the biggest problem is keeping the sensor on long enough.. The longest he has gone is 4 days...then it falls off.
I ordered Opsite and it has worked great for Madi, but I got it in the mail when Craig decided he was over it.
He had a practice for a church activity.  He said it was poking him and he could feel it under his skin..the CGM was saying it couldnt communicate and he pulled it out. 
He hasnt put a new one in since.
The hard part is that now, theres no visual of his blood sugar.  At night I have to check him, or hope he is ok..
Even if he goes to bed a good number, does not guarantee he wont drop.  Especially since he is involved in so many activities..

I still am hoping he decides to put it back on.  It is such a relief to me to know and have an alarm at night.
I worry he may not wake up..
Ive checked him before and hes been in the 40s and not woken up.. Ive just woken up from my sleep and felt the spirit tell me to check him.  Its been amazing that every time that happens, he is low. 
The other night I felt it.  I woke up and felt I needed to check him. It was 5am so I thought to myself, "no, he is fine, he will be up in an hour and he was good before bed"
I could barely keep my eyes open or even think about getting out of bed...
I closed my eyes and again felt I need to check him.. I again ignored it and closed my eyes..'Then I had a flash of him having a seizure in his sleep..
Ya, that woke me right up! I got his meter and checked him and he was low.
Those are the things that really make me want him to wear the CGM!!
Its a scary disease.. And its so hard to see him struggling..
He just wants to be "normal" and not have tubes and sensors on him 24/7...
Which I understand..
He has always been so positive about his care, and he is just having a hard time right now.
I know it will pass..

No comments:

Post a Comment